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Our Mission
Our mission is to enrich the lives of people with Rett Syndrome and those who love them, befriend them, and otherwise serve them. Our goal is to further promote the needs, desires, and abilities of those with Rett Syndrome to a worldwide audience.
Founders
Janine Battistone is the proud mother of two daughters, including a 23 year old woman with Rett Syndrome. She has edited and published a number of publications including the newsletters for the Jackson Michigan Freewheelers Cycling Club and the Tower Genealogy Society. E-mail Janine
Greg Long is the proud father of an 12 year-old daughter with Rett Syndrome and a 13 year old son. Greg has over 25 years of advertising and marketing experience for clients such as General Motors Corporation, Ford Motor Company, National Car Rental, Bassmaster Magazine, California Lawyer Magazine, Horse & Rider Magazine, Snowmobile Magazine, and more. Greg's experience in disability media publishing includes serving as marketing director for the internet pioneer disability portal iCan.com and advertising sales representative for Exceptional Parent Magazine. E-Mail Greg
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