|
Welcome to Rett Syndrome Magazine
Rett Syndrome Magazine is for and about those with Rett Syndrome and those who love them, care for them, befriend them, or otherwise serve them. The mission of this online magazine is to focus on solutions, services, and supports that enhance the day-to-day lives of those in the Rett Syndrome community. This includes those with Rett Syndrome, parents, caregivers, siblings, friends, physicians, researchers, nurses, educators, social workers, therapists, and others. Our goal is to freely share information, stories, and inspiration with others.
About Rett Syndrome
Rett syndrome is a neurodevelopmental disorder that primarily affects girls, striking at random in early childhood and destroying speech, normal movement and functional hand use. Many with Rett syndrome become wheelchair bound; those who walk display an abnormal, stiff-legged gait. Disordered breathing patterns, tremors, and seizures are common. Rett syndrome is named after Dr. Andreas Rett, an Austrian physician who first published scientific papers about this disorder in the 1960s. One of the challenges in learning about the disorder is the variations and mispellings of the name. It is also known as Rett Disorder. Common mispellings include: Rett's syndrome and Rhett syndrome. Abbreviations used for Rett Syndrome include RS and RTT. More
Living with Rett Syndrome
Rett Syndrome Magazine was founded by two parents who are inspired by the day-to-day joys of living with two remarkable daughters living with this disorder. Our daughters live remarkable lives, particularly when provided opportunities, tools, and training to overcome their physical disabilties. They teach us new things every day. We believe they have a pureness of spirit that few human beings ever achieve in life. They make a remarkable difference in the lives of their family and friends.
|
